Rare diseases run 2025

The 4rd Rare Diseases Run, will take place from 24th February – 2rd March 2025.

It is a virtual and inclusive sports event for everyone. No matter if you walk, run or roll.

Choose your distance, your pace and your favourite route.

To take part in a virtual run, you register, choose a route and wait until the start. Then you run your chosen route in the corresponding time period and measure your time with your running watch (for example from Garmin or Polar) or an app on your smartphone (Strava or Runtastic). Then upload your time to the running portal and, after successfully completing the run, you receive your certificate and are included in an international ranking.

So, run whenever you want, wherever you want, but run for Team CACNA1E International!

Choose your running package starting with the online option for 10€ only. Up to a premium package with a medal and shirt. Every package and every participant will contribute to a donation pot that will be shared amongst

32 patient organizations from 3 different countries representing different rare diseases to support their work.

Here will be the link for registration as soon as it is available!

If you are interested in running with us and have questions, please contact us with the form below!