Most of our kids can't walk or talk.

They have to deal with serious health issues like

• Epilepsy: life-threatening seizures
• Dystonia: involuntary body movements that are often painful
• Muscle weakness, to the extent of being unable to move at all
• Autism
• Severe sleep problems
• Neurodegeneration: brain cells are dying

              and/or

• Development delay or no development at all

We are a group of passionate parents from all over the world

coming together to fund life-changing research on CACNA1E.

We plan to bring families, doctors and the world's

best scientists together in a collaborative effort.

There is already research underway in a renowned clinic in Germany,

aiming to develop a drug specialized in treating CACNA1E.

We support this research not only with financial resources,
but also with presence and public relations work.

Our kids need a targeted treatment and cure.
Be part of our mission, show solidarity, donate
and help us become better known worldwide!